Every day in Australia 2 people are diagnosed with Motor Neurone Disease and 2 people die because of MND.

The Cure for MND Foundation is passionate about funding the best and brightest MND research within Australia – to discover treatments and ultimately a cure.

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Early MND Detection Checklist

Typical Early Warning Symptoms and Signs of MND

Most MND symptoms are gradual in onset and get worse as time progresses. Symptoms are what the patient feels, and signs are what the doctor will see upon examination.

Symptoms include:

  • Muscle weakness, which usually starts in the hands and feet, and sometimes shoulders and hips
  • Hand weakness, manifesting itself in dropping things, difficulty opening jars and using nail clippers, worsening writing, etc.
  • Foot weakness results in tripping, difficulties climbing stairs – typically without pain or sensation loss
  • Difficulty with speech such as slurring, tongue weakness with twitches, and difficulty swallowing
  • Atrophy and/or twitching in muscles (fasciculations), cramps and stiffness
  • Changes in behavior like increased impulsivity, excessive laughing or crying

While these symptoms can be associated with many other disorders, people experiencing them should contact their GP and get a specialist Neurologist referral.

What the physician will see as possible signs of MND are:

  • Muscle atrophy and/or fasciculations, weakness, and increased tone/spasticity in muscles and/or increased deep tendon reflexes
  • Slurred and/or spastic speech, excess saliva, shortness of breath, and/or cognitive changes
  • Reduced lung capacity on spirometry
  • All of these signs will be in absence of sensory or other changes on examination

Cure for MND Foundation

To Cure, to Care, to Make Aware.

The Cure for MND foundation is Australia’s leading independent MND foundation focused on funding large-scale collaborative research projects, clinical trials, and vital assistive equipment for all Australians living with MND. We do so in the hopes that we may all one day live in a World free from MND. 

2017 Run Melbourne

Join the Cure for MND Foundation Team Today!

30th July 2017

Run this city and take in all of Melbourne’s iconic landmarks, feel the buzz of the live entertainment and soak up all the energy that Run Melbourne has to offer.  There are events for all levels of fitness, ranging from those enjoying a morning walk through to those runners looking to reach a new personal best time in the 21.1km event. Join #TeamCure4MND today as either a Champion Runner or as a regular participant, and help us raise awareness and funds to beat the Beast that is MND!

The estimated life time risk of being diagnosed with MND is 1 in 350 for males and 1 in 400 for females – this is about the same as one person in an average movie theatre. It can strike anyone.

Source: Amyotrophic Lateral Sclerosis: Kiernan MC, Vucic S. et al. Lancet 2011; 377: 942-55

More than 2000 people are currently fighting MND in Australia. 60% male and 40% female. Every day at least 2 more are diagnosed and unfortunately 2 more die because of the disease

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

A new study led by researchers with the United Nations (UN) has projected that the number of cases of MND globally will increase by 69% over the next 25 years, primarily due to population ageing

Source: K.C Arthur et al, Nat Commun. 2016; 7:12408

Approximately 58% of people with MND are under the age of 65, but the disease can strike at any age and can affect anyone.

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

The total economic cost of MND in Australia was $2.37 billion in 2015. With around 2000 people currently fighting in Australia, this equates to $1.1 million per person

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

For each year they live, every MND patient will on average require $31,598 worth of equipment (this does not include costs associated with carers, medications, home renovations, wheelchair accessible cars, or hospital admissions)

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

The average lifespan of someone diagnosed with MND is between 2-5 yrs. This equates to an average lifetime cost of between $63,196 and $157,990 in equipment needs alone

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

The estimated cost to live with the disease is around $200,000+ per year depending on level of disability and needs of the individual

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

In 2013 there were 147,678 deaths registered in Australia. With 787 deaths related to MND that year, MND therefore accounted for 1 in 200 deaths in 2013

Source: Australian Institute of Health and Wellbeing (AIHW)

The number of deaths each year from MND is rising - the disease can affect anyone at anytime

Source: Australian Institute of Health and Wellbeing (AIHW)

Upcoming Cure for MND Events...

april 2017

22apr10:00 am- 5:00 pmCure for MND Research & Clinical Trials Symposium2017 Annual Symposium10:00 am - 5:00 pm AEDT Florey Institute of Neuroscience and Mental Health

june 2017

12jun12:00 am- 11:59 pmBig Freeze 3The Big Freeze at the G is Back!12:00 am - 11:59 pm AEDT Melbourne Cricket Ground MCG

july 2017

30julAll Day2017 Run MelbourneWalk, Jog, or Run for A Cure to MND(All Day: sunday) AEDT Federation Square, Melbourne

october 2017

12oct - 15oct 1210:00 amoct 15Daniher's Drive 2017Driving for A Cure To MND10:00 am - 12:00 pm (15) Victoria

2-for-2 fund

Dedicated to closing the MND revolving door.

The 2 for 2 Fund provides a way for you to commit a direct investment into helping change the lives of MND patients and their families.

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Daniher's Drive

Victoria – Let’s cure MND

A fun four-day road-trip extravaganza raising much needed awareness and funds to find a cure for Motor Neurone Disease.

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CureMND App

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Stay up-to-date with everything the foundation is doing in the fight against Motor Neurone Disease.

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CureMND Forums

COMMUNITY – EDUCATION – SUPPORT

The Cure for MND Forums are a safe online community where you can ask questions, discuss concerns, voice your thoughts and share your experiences.

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THE BIG Freeze 3 is coming in 2017

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In 2016, the Big Freeze 3 event raised $6.1 million for vital MND research and clinical trials

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