Register To Purchase The 2018 Big Freeze Beanie

Here’s your chance to register to purchase next years 2018 Big Freeze Beanie. By registering your interest you will be first in line to purchase the beanies before they go on sale to the general public. The beanies have sold out in record time for the last 3 years, make sure you don’t miss out next year

Early MND Detection Checklist

Typical Early Warning Symptoms and Signs of MND

Most MND symptoms are gradual in onset and get worse as time progresses. Symptoms are what the patient feels, and signs are what the doctor will see upon examination.

Symptoms include:

  • Muscle weakness, which usually starts in the hands and feet, and sometimes shoulders and hips
  • Hand weakness, manifesting itself in dropping things, difficulty opening jars and using nail clippers, worsening writing, etc.
  • Foot weakness results in tripping, difficulties climbing stairs – typically without pain or sensation loss
  • Difficulty with speech such as slurring, tongue weakness with twitches, and difficulty swallowing
  • Atrophy and/or twitching in muscles (fasciculations), cramps and stiffness
  • Changes in behavior like increased impulsivity, excessive laughing or crying

While these symptoms can be associated with many other disorders, people experiencing them should contact their GP and get a specialist Neurologist referral.

What the physician will see as possible signs of MND are:

  • Muscle atrophy and/or fasciculations, weakness, and increased tone/spasticity in muscles and/or increased deep tendon reflexes
  • Slurred and/or spastic speech, excess saliva, shortness of breath, and/or cognitive changes
  • Reduced lung capacity on spirometry
  • All of these signs will be in absence of sensory or other changes on examination

elongated-cure-for-mnd-logo

The Foundation is launching a call to arms for all Australians to Fight MND.

Everything we do, we do to Fight MND.

Our commitment is that no one will be left behind, the fight will continue until every Australian with MND can access a new potential treatment and ultimately we find a cure.

Fight MND. It’s what we do and it’s how we will beat this beast of a disease.

2017 Run Melbourne

Join the FIGHT MND Team Today!

30th July 2017

Run this city and take in all of Melbourne’s iconic landmarks, feel the buzz of the live entertainment and soak up all the energy that Run Melbourne has to offer.  There are events for all levels of fitness, ranging from those enjoying a morning walk through to those runners looking to reach a new personal best time in the 21.1km event. Join the Fight MND team today and help us raise awareness and funds to beat the Beast that is MND!

The estimated life time risk of being diagnosed with MND is 1 in 350 for males and 1 in 400 for females – this is about the same as one person in an average movie theatre. It can strike anyone.

Source: Amyotrophic Lateral Sclerosis: Kiernan MC, Vucic S. et al. Lancet 2011; 377: 942-55

More than 2000 people are currently fighting MND in Australia. 60% male and 40% female. Every day at least 2 more are diagnosed and unfortunately 2 more die because of the disease

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

A new study led by researchers with the United Nations (UN) has projected that the number of cases of MND globally will increase by 69% over the next 25 years, primarily due to population ageing

Source: K.C Arthur et al, Nat Commun. 2016; 7:12408

Approximately 58% of people with MND are under the age of 65, but the disease can strike at any age and can affect anyone.

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

The total economic cost of MND in Australia was $2.37 billion in 2015. With around 2000 people currently fighting in Australia, this equates to $1.1 million per person

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

For each year they live, every MND patient will on average require $31,598 worth of equipment (this does not include costs associated with carers, medications, home renovations, wheelchair accessible cars, or hospital admissions)

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

The average lifespan of someone diagnosed with MND is between 2-5 yrs. This equates to an average lifetime cost of between $63,196 and $157,990 in equipment needs alone

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

The estimated cost to live with the disease is around $200,000+ per year depending on level of disability and needs of the individual

Source: Deloitte Access Economics report 2015: Economic Analysis of MND in Australia, report for Motor Neurone Disease Australia, Deloitte Access Economics, Canberra, November

In 2013 there were 147,678 deaths registered in Australia. With 787 deaths related to MND that year, MND therefore accounted for 1 in 200 deaths in 2013

Source: Australian Institute of Health and Wellbeing (AIHW)

The number of deaths each year from MND is rising - the disease can affect anyone at anytime

Source: Australian Institute of Health and Wellbeing (AIHW)

Without you MND will keep on killing…. Click to donate today

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